We had this really amazing home nurse named Terri a few years ago when our son Cooper was first sick. She came once a week to change his PICC dressing, check vitals and make sure he was doing ok at home. (Eventually she taught me to do this myself). I was so overwhelmed with a newborn and a newly diagnosed (Primary Immune Deficiency) son who was fighting an EBV infection. Life had been a whirlwind for a few weeks between hospital stays and learning to flush IV lines. Friends were bringing us meals, sending cards and calling to check in, and then suddenly life went back to normal… for everyone else. And I was so isolated and lonely.
I told Terri about it one day. You see, Nurse Terri’s daughter was a college student in the middle of battling lymphoma at the same time that she was being our nurse. (Can you imagine?) She was so good for me. I needed someone in my life who understood the terrifying moment I was in. She more than understood. She told me how life was like a “Merry Go Round.” We are all on it going around and around until a tragedy strikes, then we get off. A few friends may get off with us for a while but there comes a day when they have to get back on…back to their own lives. But you have to stay off until you’re ready to get back on. It is unrealistic to expect everyone to stay off with you. But one day you are ready to jump back on…and get back into your new “normal.”
I have thought about this analogy so many times. Maybe it isn’t really that earth shattering for you, but for me it was very true. It was true when Cooper was sick, it was true when my Grandma was dying. It was true when my mom was battling cancer last year….and it is true today. When we are grief -stricken or terrified for the future, whatever the cause I know I kinda want time to stand still for everyone else too…I don’t want to miss anything and I don’t want to feel isolated. I have learned first hand, however, and observed in others that we are really the only ones who can walk the path before us. Does that make any sense? We all have our own personal journey. Don’t get me wrong, I am so thankful that God made us relational beings who need each other, because I don’t know what I’d do without my friends and family. But, we all experience things in life differently. God has used all of these twists and turns in my life to make me who I am today.
Throughout this past month I know hundreds of friends and acquaintances have been praying for me. You’ve been sending me messages and notes, texts and phone calls and flowers. I feel so loved and cared for. Those closest to me have endured hours of rambling about all my fears and have watched my kids for countless hours. My parents have picked my kids up from school for me so many times because of all the appointments. I am so thankful. Our world has briefly stood still around here as we held our breath and waited for test results.
My lung and liver tumors both showed signs of being benign. Combined with the fact that I have no apparent symptoms to these tumors they will be re-scanned in 3 months. My breast biopsy Monday came back benign thankfully. I have some atypical cells and was asked to consider a “chemo-prevention” pill I’d take for some amount of years (sounds too scary). And of course I am also considering prophylactic surgery since I keep having these problems, (this was my 6th breast biopsy). All of these things are full of risks and I’m not sure what I’ll do honestly. Lastly, I am having a bone scan this coming week to look at the tumors in my bones. This is the only thing that has actually been causing me pain. I have had chronic pain in my hips for the last year. I was sure I had arthritis or a herniated disk. I do have disk degeneration but the tumors are a bit more worrisome. The doctor said a bone biopsy is probably in the works. Either way, it appears that the tumors are causing me the pain. I am ready to get answers, but I’m not sure I really want to know any more…
So, while we hang out off the “Merry Go Round” for a while, I am so thankful for how God has prepared us for this moment. We have been through other circumstances that have prepared us for this one. I’m thankful that we are not crushed, by this current affliction. We are not driven to despair. This reminds me of 2 Corinthians 4:7-18… (take some time to read the whole thing if you can, but keep in mind, Paul is referencing being persecuted for your faith. It just reminds me of how our bodies are temporary and yet we are living for eternity).
“… Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison. as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.” -v. 16-18





































